Wednesday, January 15, 2014

Steroids

Good Day All:

The last couple of days, Kayni has been in a lot of bone pain - serum sickness caused by the ATG treatment.  I took her to the hospital around 2 AM on Monday.  The steroids that were helping Kayni manage the pain had to be stopped (as anticipated) so that the two-day post-transplant chemo will be given a chance to kill any of the T-Cells on the donor's bone marrow that can cause graft-vs-disease (GVHD).

The doctors and nurses have been great.  They have been providing medicine to help calm the pain, though the medicine only masks the pain, it is still there.  It has been sleepless nights for her even with a 24 hour PCA - narcotic as pain occurs (push button).  For the most part, the nurses and doctors who continually came into her room and to monitor her vitals were a great source of comfort and support.

The steroids will start again tonight so Kayni should be much more comfortable. I am hoping that by tomorrow she'll be back on her feet.  Sleep should come easier for her tonight as she won't be constantly fighting off the pain.

That is all I have for right now. I need to get back to Kayni at the hospital.  Please keep her in your prayers, thank you All.

Jeff.

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