tag:blogger.com,1999:blog-37334280175524828822024-02-23T18:03:06.133-08:00kayni's bone marrowKaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.comBlogger39125tag:blogger.com,1999:blog-3733428017552482882.post-67422505199260904862015-02-21T14:13:00.001-08:002015-02-21T14:13:24.349-08:00I've Got SinglesRead update HERE.Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com0tag:blogger.com,1999:blog-3733428017552482882.post-86571333381105616322015-02-09T12:14:00.000-08:002015-02-09T12:14:03.553-08:00Monday, Monday!Read my latest update HERE.Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com0tag:blogger.com,1999:blog-3733428017552482882.post-74570377729157354562015-01-22T09:17:00.003-08:002015-04-01T19:16:57.491-07:00Things Are Looking UpYou can read my latest update HERE.Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com0tag:blogger.com,1999:blog-3733428017552482882.post-21352282244698165822015-01-11T19:09:00.000-08:002015-01-11T19:09:05.296-08:00First Re-Birthday!Please click HERE, to read about my post regarding my First Re-Birthday!Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com0tag:blogger.com,1999:blog-3733428017552482882.post-84441413149171097372014-10-21T12:34:00.002-07:002014-10-21T12:38:51.090-07:00Its Day +282!I am still here. Although I've been so quiet, no news is good news.
There are days I still can't believe I am here.
I've asked my husband, several times, if there were moments during my treatment that he thought I wouldn't make it. He'd say, "No. I knew things will be alright and that you'll get through the transplant okay." That's my husband, between the two of us, he is the optimist. I tend Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com0tag:blogger.com,1999:blog-3733428017552482882.post-75563286198162695552014-07-25T17:49:00.003-07:002014-07-25T17:56:36.794-07:00Six-Months Post-BMT"Yes, you can eat seafood and have a beer too!"
Could that be true?
I've been avoiding all alcoholic drinks for the past eight years because of my low platelets; Alcohol impairs the ability of the bone marrow to produce platelets, since my platelets were so low, alcoholic drinks were prohibited. Today, Dr. D finally said I could have one.
Am I dreaming? It's good great news, but I'm not Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com0tag:blogger.com,1999:blog-3733428017552482882.post-75190114124101642762014-07-02T17:48:00.002-07:002018-04-11T13:37:57.694-07:00AftershocksThere's a lot of misconceptions about my bone-marrow transplant (BMT) and my life after it. Some people I know think it's surgery and that after a BMT everything goes back to normal.
No and No.
It's not surgery, not even close. It's more of a long drawn out transfusion. Heck, it is transfusion except that that bag is filled with blood and marrow. The infusion is long - mine took six hours to Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com1tag:blogger.com,1999:blog-3733428017552482882.post-45778855080242165522014-06-08T18:53:00.001-07:002014-06-08T18:53:06.143-07:00Day +148: Hoping For RainI was hoping it would rain tonight. There was definitely thunder a while ago, but the rain clouds never made it to our area. I'm still hoping we'll get some good soaking overnight.
Prednisone helped quell my skin GVHD for about two weeks. BUT the past two days, there's a bit of a rash that reappeared on my cheeks. It is frustrating that these rashes aren't going away as soon as I want them to beKaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com1tag:blogger.com,1999:blog-3733428017552482882.post-58309263841923856212014-05-29T13:17:00.001-07:002014-05-29T14:41:16.675-07:00Day +138: Rainy Days And SteroidsToday, I am day +138.
Recovery is going well except for this annoying mild skin graft-vs-host disease (GVHD). It's mild but the itchiness is annoying. I am not looking forward to the summer heat and humidity because the past two humid days, my skin was so itchy and I was miserable.
Last week, my doctor decided to put me on a low dose of Prednisone to treat my skin GVHD. I've been taking itKaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com0tag:blogger.com,1999:blog-3733428017552482882.post-85014823010712260462014-05-20T17:21:00.003-07:002014-05-20T17:21:42.105-07:00Of Home And SampaguitasRead my latest update HERE.
Thank you for reading.Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com0tag:blogger.com,1999:blog-3733428017552482882.post-39189789522385361722014-05-17T19:26:00.000-07:002014-05-17T19:32:14.683-07:00SteveWe were driving to Mt. Airy to check out a yard sale when Mom got a call.
"Steve died last night!"
We froze. Mom was speechless.
We met Steve and his wife, when I was getting chemo at the hospital. I was in the midst of my treatment when he started his. At that time, we were both getting a bone-marrow transplant (BMT). I was being treated for Aplastic Anemia and he was being treated for Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com0tag:blogger.com,1999:blog-3733428017552482882.post-41925433330787904222014-05-11T16:33:00.003-07:002014-05-11T16:33:28.167-07:00Day +120: Biking By The BayMy latest update HERE.
Thank you for reading.Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com0tag:blogger.com,1999:blog-3733428017552482882.post-26654415075577395552014-04-30T18:18:00.004-07:002014-04-30T18:18:58.430-07:00Hello Spring!Read my latest update HERE.Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com0tag:blogger.com,1999:blog-3733428017552482882.post-38063155201104376552014-04-20T09:11:00.003-07:002014-04-20T09:11:34.076-07:00Day +99: EasterHappy Easter!
There are no coincidences!
I'm exactly +99 days today and it's also Easter. Easter is a day of rebirth, renewal and the beginning of a new life. Going through something traumatic, such as a bone-marrow transplant, this day is symbolic and auspicious. Through my donor, I've been given a new life - a second chance to be with my family and friends. Through Easter, we remember Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com0tag:blogger.com,1999:blog-3733428017552482882.post-30332089258792563342014-03-20T13:14:00.002-07:002014-03-21T05:47:44.445-07:00Day +68: ThoughtsAnd the sun came out...
It's been cold and grey the past few days. I've been missing the warmth and light of the sun, but today, I'm so happy because the skies are blue and the sun shone all day. The trees are still bare, but after a cold and menacing winter, hope springs eternal - the Cherry Blossom on the front yard is full of buds.
Sometimes, I still wonder why "this" happened to me, but I Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com0tag:blogger.com,1999:blog-3733428017552482882.post-30762816303061947012014-03-15T16:12:00.001-07:002014-03-15T16:15:40.085-07:00Home
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Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com0tag:blogger.com,1999:blog-3733428017552482882.post-2116591047287714842014-03-04T13:49:00.001-08:002014-03-06T18:36:48.795-08:00OvercomerTime flies! I can't believe it's March already.
I know a lot of things have changed. Pre-transplant, I thought that was "it". You know, the "end." Now, I could see hope and future. It may be premature to say such things since I am only on Day +52, but I am feeling a lot better physically and emotionally. Of course there are days my fears swallow me and send me to depression, but I tryKaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com0tag:blogger.com,1999:blog-3733428017552482882.post-65099464464723951952014-02-28T17:34:00.002-08:002014-02-28T17:34:32.532-08:00Day +48: Seven Days To GoAt last, some good news!
My nurse practitioner came today with some good news. My viral infection is gone, and that I can go home on Friday, March 7. My husband and I were relieved and elated.
Of course there's a catch, there's always a catch.
I have to go through another bone-marrow biopsy; I think this is now my 10th biopsy. I did asked to be sedated though. In addition, they'll also "take Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com2tag:blogger.com,1999:blog-3733428017552482882.post-69029621195908116942014-02-26T08:48:00.001-08:002014-02-26T18:25:24.488-08:00Day +46 UpdateThe past few weeks were uneventful and we like it that way.
Every single day has been routine blood work and just keeping up with my meds. Sometimes, I feel like a dog on a leash that all my activities are either restricted or controlled. Boredom is starting to get me as we do the same thing every single day. I try not to over think the routine. I just close my eyes and put one foot Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com6tag:blogger.com,1999:blog-3733428017552482882.post-302118880364874662014-02-14T11:58:00.001-08:002014-02-27T06:58:47.004-08:00Valentine's DayHappy Valentine's Day, Kayni!
Those were my husband's first words of the day. No cards, no flowers and no presents, but they're the sweetest words I've ever heard. My husband, family and friends are my wonderful gifts this Valentine's Day. They've been my support and source of strength.
I give most credit to my husband who's been with me every single day, 24 hours each day since I've beenKaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com3tag:blogger.com,1999:blog-3733428017552482882.post-70909993058798164422014-01-30T17:18:00.000-08:002014-02-13T14:17:10.743-08:00A Reflection On Day 0It was a foggy day in Baltimore and it was my birthday.
We were at the hospital waiting. My nurse came in once in a while to update us. Kepi, Mom and Dad were there. The cells are coming in by plane and it should be around 2:30 PM (ET). My nurse was a bit worried because it's too foggy and he was concerned if planes can even land through the thick fog.
I was worried.
But by 2:30 PM, the Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com4tag:blogger.com,1999:blog-3733428017552482882.post-24141269848023184972014-01-23T18:35:00.000-08:002014-01-23T18:35:19.343-08:00The Day I Lost My HairToday, I shaved my head bald.
The past few days have been routine check-ups and making sure my body is getting all the meds and nutrients it needs. Since my immune system is totally out, I am on several antibiotics keeping my body safe for the time being; I have a lot of meds and they're for anti-rejection, anti nausea and more. I also have to wear a heavy respirator and surgical mask whenever Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com5tag:blogger.com,1999:blog-3733428017552482882.post-17278747037129476172014-01-16T18:57:00.002-08:002014-01-19T18:15:41.910-08:00Nights of Serum SicknessThe passed two days have been filled with excruciating bone pain and torturous screams and cries to the night.
January 13-14: A Night Of Firsts: A Long Day
I was complaining of joint pains to my nurse on that day (January 14), but since they weren't affecting my walking, my nurse said it could just be the chemo. I noticed though that around 6 PM, my right knee looked swollen. I Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com5tag:blogger.com,1999:blog-3733428017552482882.post-9057183905026139962014-01-15T08:52:00.002-08:002014-01-16T11:02:08.332-08:00SteroidsGood Day All:
The last couple of days, Kayni has been in a lot of bone pain - serum sickness caused by the ATG treatment. I took her to the hospital around 2 AM on Monday. The steroids that were helping Kayni manage the pain had to be stopped (as anticipated) so that the two-day post-transplant chemo will be given a chance to kill any of the T-Cells on the donor's bone marrow that Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com0tag:blogger.com,1999:blog-3733428017552482882.post-73058163860917626552014-01-10T15:50:00.001-08:002014-01-12T08:55:53.216-08:00The Last Few DaysKepi hereā¦
The last few days have been rough going for Karen. The effects of the ATG have started to kick in, night-sweats, hives, nausea, lack of energy and the occasional fever. I have been monitoring Karen's temperature and making sure she is well hydrated and is eating.
Yesterday was her full-body irradiation. This was done, basically, to prepare her bones to receive the Kaynihttp://www.blogger.com/profile/16254288295399517120noreply@blogger.com4