It was a foggy day in Baltimore and it was my birthday.
We were at the hospital waiting. My nurse came in once in a while to update us. Kepi, Mom and Dad were there. The cells are coming in by plane and it should be around 2:30 PM (ET). My nurse was a bit worried because it's too foggy and he was concerned if planes can even land through the thick fog.
I was worried.
But by 2:30 PM, the courier, a woman with disheveled hair, arrived. She said that she had to rush the cells as soon as it arrived. I was grateful and I told her, "Thank you."
The bag was huge, bulky and heavy. As you can see (photo below), my nurse had to reinforce the way it was hung because it might fall. The bag was pumped from 2:30 PM to 4:30 PM. It was a long day. It was a long life-saving day.
Before Day 0 or Transplant Day or my transplant birthday, I was nervous (scared) that my donor might back out. But my faith in man was restored and that there are some people out there who are unselfish and dedicated to save their fellow men.
To my donor, I can't possibly describe how grateful I am. My feelings were indescribable that I was in tears when your cells were pumped into my system. I know there are other obstacles I have to go through such as engraftment, infections and graft-vs-host disease, but with your gift of life, I know I can make it through anything. You have given me a feeling of hope and courage. Again, thank you. My family thanks you.
I hope that what you did would encourage would be donors especially in the minority communities.
I hope we can meet soon. If the slipped rumors are true at the hospital, it would be lovely to meet you in the islands of Aloha, my home state. It might have been fate that I am forever bound with these beautiful islands. If the rumors are true, then I have a second Ohana (family) in Hawaii.
Mahalo nui loa. (Thank you very much.)
Ke Akua pu a hui hou. (God bless you and see you later.)
Showing posts with label bmt donor. Show all posts
Showing posts with label bmt donor. Show all posts
Thursday, January 30, 2014
Monday, December 2, 2013
Thanksgiving Worth Remembering
My doctor gave me Friday, Nov. 29, as a day off from my regular twice-a-week transfusions. It seems that my body is now holding on to my platelets longer. I attribute that to the IVIG treatment I was given. Also, I no longer bruise easily which is a relief. I get so unhappy when my body is covered with bruises and the horrible looking petechiae.
Recently, I don't like how my photos look. I noticed that I look so old, tired and haggard.
On Wednesday, Nov. 27, I got an e-mail from Miss R, my BMT case manager, that a donor has confirmed. I cried. My coworkers were so elated and they hugged me. We cried.
I knew a week or two earlier that we had two possible 9/10 donors, but we were still waiting for a confirmation. I didn't want to either keep my hopes up or write about them on my blog, as I think it was too early. Also, a donor can choose not to donate at all.
With a hopeful heart, I packed my clothes as we, my parents, husband and I, were Atlantic City (AC) bound to spend Thanksgiving there. We thought we needed a break from our routine; We needed to get away from the things that makes us sad. During our drive to AC, Miss R sent me another e-mail confirming that we have a harvest date - meaning my donor has agreed to have her/his bone marrow harvested on a certain date.
I was astounded. It was hard to comprehend how my Thanksgiving is shaping or should I say becoming a true embodiment of gratitude: Gratitude to God; Gratitude to my donor's kindness; and, Gratitude to my supportive family and friends. I know I have a long way to go, but this is one of the biggest steps to getting a cure.
Truly, I am lost for words but deep inside, the truest form of "gratitude" beats within my heart. I have no words to fully describe it.
Yes, my donor is not a full match (10/10) and this will involve a bigger chance for graft-vs-host disease (GVHD). GVHD "is a complication that can occur after a stem cell or bone marrow transplant in which the newly transplanted donor cells attack the transplant recipient's body" (NIH). This is my biggest worry, but for now, I will dwell on the spirit of gratitude.
For truly, God has taken me this far and I know He will see me through recovery.
Hugs from chilly Washington D.C.
Recently, I don't like how my photos look. I noticed that I look so old, tired and haggard.
On Wednesday, Nov. 27, I got an e-mail from Miss R, my BMT case manager, that a donor has confirmed. I cried. My coworkers were so elated and they hugged me. We cried.
I knew a week or two earlier that we had two possible 9/10 donors, but we were still waiting for a confirmation. I didn't want to either keep my hopes up or write about them on my blog, as I think it was too early. Also, a donor can choose not to donate at all.
With a hopeful heart, I packed my clothes as we, my parents, husband and I, were Atlantic City (AC) bound to spend Thanksgiving there. We thought we needed a break from our routine; We needed to get away from the things that makes us sad. During our drive to AC, Miss R sent me another e-mail confirming that we have a harvest date - meaning my donor has agreed to have her/his bone marrow harvested on a certain date.
I was astounded. It was hard to comprehend how my Thanksgiving is shaping or should I say becoming a true embodiment of gratitude: Gratitude to God; Gratitude to my donor's kindness; and, Gratitude to my supportive family and friends. I know I have a long way to go, but this is one of the biggest steps to getting a cure.
Truly, I am lost for words but deep inside, the truest form of "gratitude" beats within my heart. I have no words to fully describe it.
Yes, my donor is not a full match (10/10) and this will involve a bigger chance for graft-vs-host disease (GVHD). GVHD "is a complication that can occur after a stem cell or bone marrow transplant in which the newly transplanted donor cells attack the transplant recipient's body" (NIH). This is my biggest worry, but for now, I will dwell on the spirit of gratitude.
For truly, God has taken me this far and I know He will see me through recovery.
Hugs from chilly Washington D.C.
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